Don’t worry Muse-loving readers– the frequency of the blog posts may go down but the content is coming. I have a long list of blog ideas to work through and eventually I will get back up to posting when they are complete.
So a couple of posts ago I talked about how excited I was to finally have someone look and see if I’m officially autistic. I was so excited, typed out 2 pages of all things i could remember from my childhood that may be associated with being autistic and tried to prepare for this meeting. I prepared myself mentally and physically and couldn’t fathom the idea that in all this excitement the inevitable happen: We had to reschedule.
Now-don’t get me wrong. Life happens. I get that. And the impression I got from this psych in the one live communication I had with her over the computer was that she was confident in helping people where they needed it. So here I was — need helping–and reality and stereotypes stepped in. Something or someone else decided it wasn’t to happen that day. I also keep mind that she was providing a free service (another reason why I am just getting to venting about this) and that I may be lower on a priority list than others who pay and need more immediate services.
But to me–it was immediate. I had finally found something that would either help self-validate my concerns about myself or at least point me in the right direction. Now–with that meeting less than 2 days away–I am anxious/upset/nervous about trying again to meet up online. What if it happens again? Do I make sure I tell her how I feel? And my emotional well-being is so irregular right now due to LIFE that I 1) want a break and 2) know it cannot happen that way.
Hopefully Friday will come with meeting with this psych and things I really want to talk about will happen.
I haven’t run out of topics I swear. But occasionally I like to not focus on all the series things and do something fun. So today, I searched “Holidays for April 17th https://www.checkiday.com/4/17/2019 ) and I thought I’d look at the things that our calendar is stating we are to celebrate today lol.
NATIONAL CHEESEBALL DAY
While I’m sure we have all made a nice habit of enjoying these little delights due to staying inside– today is an excuse to eat some more. Nice!
ELLIS ISLAND FAMILY HISTORY DAY
Check this link out to see if your family came thru here and honor the day! I think i see someone from mine that came over in 1909 from Hamburg Germany!
and the random piece of history? — Today in 1986 the world’s longest war where a shot was never fired ended today. It was between the Isles of Sicily & the Netherlands. It was a total of 335 years-wow!
Hope this brings a little joy into your lives. I may start slowing down on blogs here but don’t worry–I’m still here!
Wow-Yesterday was Easter. Until this year, arguably one of the most heavily packed church seasons. A day that typically, any autistic would be super nervous about since 1) there is an overload of sensory stimulants from increased volume of people, food (honestly things that smell horrible) and energies; 2) it is hard to read people on what their doing because it is a holiday and neurotypical people like to communicate differently on these type of days and 3) did I mention the sensory stuff? Did I? OK-just checking.
As my previous blog discussed, my son colored in my Bible. And part of our discussion came up about what we worship. We determined that while the Bible is sacred and holy, we do not worship it, the paper that it is on or the people who wrote it. We are called to worship God. And it got me thinking– what would worship look like from an autistic point of view? I actually have been thinking this a lot–when I got to church, trying to wonder if what we’re communicating would translate to someone who communicates differently. It’s not something a lot of people think about normally– let alone in church.
Well, first is how we define worship. It is adoration to God. I would argue it does not need to be proper. It does need to be set apart. Something of praise and singing (maybe) and thanksgiving. Hey-King David danced naked in front of the Ark of the Covenant in worship of God (yep-look it up and NO, I do not recommend this at all in public.) But other than that-it really doesn’t have any guidelines. Prayer is part of worship. Singing definitely. Reading of the Word and a message for sure. And even communion is part of worship-gathering together to eat at God’s Table. when you break it down-it truly is fantastic. I love worship. probably my favorite thing to do. But that’s because I’m musically talented.
For an autistic though–any one of those things could be a trigger or a sensory overload or the opposite where its a hyper focus and they (**cough me cough**) cannot stop. (As a side note: I would have no problem living in a sanctuary or church. It’s always beautiful in my mind. Maybe i have all those overnight sleepovers at church to thank as a kid, who knows.) So I think as Christians we need to thinks/see/live worship differently. Just as we are experiencing now. Maybe for an autistic, it is a prayer room. Where one spends time in silence to God. Or maybe its a blank canvas with all types of markers and crayons. Or drums set up perfectly in line to bang against for a good 20 minutes. Or to just be silent. Talking is not necessary for worship. Or maybe its turning off the lights. Or using a favorite smell (oils are good for this) for incense to focus your mind and senses on God.
I wish I had photos of this–but after I traveled to Munich, Germany, I was part of running a 24-7 prayer room for a week in the downtown area of my school town. We were allowed in a location that was going out for lease. We were able to build it up a little and maintained a small bed/sleeping area for the overnight security and managed to keep people praying for an entire week. And while it did not last long ( there are 24-7 prayer rooms going on around the world actually)– I felt that it was more of a 24-7 prayer/worship room from the way we ran it. We have a bible reading corner with different types of Bibles, a map of the world where you could pin things to pray for those around the world. We had a news source area if you were motivated to prayer for certain situations. And we did have worship a couple times, including communion for those who wanted to participate. (if you want to see what is being done, here’s the group: https://www.24-7prayer.com . Or read the book “Red Moon Rising”-dang the imagery is great)
Then second-what do we worship. Well, that’s easy (you’d think). We worship God. But sometimes during the week, in other realms, we don’t really worship him. We worship the green coffee god, or the money god, or the “i need to fit in or be popular’ god. Worship should be God focused. If you get lost about it, pray. Seek out healthy places of worship. For a while, I couldn’t focused so I listed to a christian radio station. now-don’t get me started I feel the Christian Rock scene is complete outdated and needs a revamp and redefinition-but-I did it to help keep me focused on God. And it helped. I don’t worship my Bible. But having its pages to interact and explore with helped me reopen myself to worship. Circling back around to the original comments–My son getting involved in the only way he knew as an autistic 3year old kid was a little worship together as a family. Sometimes I hope he comes out of childhood remembering.
If you’re autistic and Christian-let me hear your ideas for worship? Anything you’d like that doesn’t happen at your church? Anything you love about your services?
Today is Good Friday. We are at the “high-low” of Easter Holy Week. The week that sorta feels a lot like this COVID-19 quarantining this year. Up and down emotions, confusion, darkness and solitutde. So I thought after a major discussion happened on my facebook post about my child coloring my bible (romans 8 to be exact-one of my undergrad professors would be proud), I thought I would look into what “holy” translates to someone who is autistic.
First–let’s look at holy in the Bible itself. The word “holy” is used all throughout the Bible and is comes from the root word meaning “dedicated” or separated ( Click here to see Strong’s connections) In Genesis, humans are, from the beginning, holy, for we are definitely separated from the rest of creation (humans get two creation stories — that’s a whole other toipc–and created in God’s own image (actually–holy means to come from God.) Abraham, Isaac and Jacob and the entire tribes of Israel are considered holy for they are separated from the rest of humanity to be the image and reflection of God. Holiness and holy action is discussed throughout Exodus as Israel leaves Egypt and wanders the desert. David is a holy king, appointed by God to be different, to be sacred, to be set apart. By the time Jesus comes, we are all called to be holy. Even in Romans (chapter 12) Paul calls Christians to be holy sacrifices. Yeah, we could spend hours upon hours studying what this term looks like in the Bible-but I also have ADHD. So I’m moving on.
So what does this mean for an autistic? And what does this have to do with my son coloring in my Bible?
First-if we, as holy already in the eyes of God, are called to act holy, then autistics are already holy in their nature. They are already set apart. Now-I am NOT saying that others are not. But autistic people typically struggle with being different then others. Being pushed aside, set apart and not for positive reasons. Actually- Neurodivergent in its nature meanings being differently wired. And as an autistic, my different-ness is actually something I can related to in being “set apart for God.” That’s a blessing truly. It’s comforting to know I can related to being different because, well, I already am. Since I was a child (and maybe I have my parents to thank for taking me to church for many years), I never thought me being different as a bad thing.
More like the orange sprinkle in a bag of mixed colors. And I was just being myself (my true self) and that was the only thing that mattered. I pushed what may have been misunderstanding and confusion into “well, I am just going to be me.” I still tried doing the right thing. I truly took to heart “what if God knew this”… which terrified me some times but it was never pushed in our house or church really… and I work hard to still have a relationship with God to make sure I am reflecting what “holy” looks like thru autistic female adult mothering eyes/actions.
Second-being holy does NOT have to deal with communication or socialization. It can be a physical sense of being set apart (wow- social distancing can be holiness in a way!) or it can be a mental separation-for some actions are revealed differently only thru your intentions. So, if I don’t know how to communicate. Or figure out how someone does something– its okay. That’s what not makes me holy. Actually, biblically speaking, its your relationship with God (which can be reflected in how you interact with other people–but not by their judgment, by God’s alone) that does more to reflect your holiness. If you reflect God, then you try to act like God and the judgement of you, your actions and your heart are left up to God. So-my son-who I know is 1) already holy in his human nature and 2) a child innocent of doing things intentionally so his mental actions are not yet fully formed and 3) does not know how to read/write/communicate that well –MAY consider coloring in my bible with pink crayons that I gave him as a gift of holiness and definitely is a gift of a adorable memory he will give me for years. It will help me to remember how one Sunday morning, due to quarantine rules and worshiping from home, my child interacted with me in service in the only way he knows how–by coloring in Romans 8.
Of Course-Being Good Friday-don’t forget that holiness does have hope in it. If we, as Christians, are called to be holy, then we are called to be the reflection of the Holy Spirit-a gift that was given by the One God who defines holiness. I know it is dark and bleak. But I hope that the holiness we reflect and we see around the world will win out the day. I know it did thousands of years ago. And I truly believe it will now.
So go be Holy. It’s easier anyways. And await the excitement that is coming Sunday!