Au-Some Afterthoughts 2020
So my last few posts have been a transformation of this blogs purpose and focus. And while time has passed since my last post, I still wanted to write out a blog about how others can really help the nuerodivergent community
1) LISTEN — Seek out the voices that truly struggle and lend an ear. Don’t try to fix us or change us. Just like in mental and emotional health, we do not need change or others fixing us and if we have something to work on, we will need to be the ones to work on it. It is better to listen and hear what we have to say. Cause I guarantee most of us don’t like too much people interaction and
2) Walk with us — I don’t know how many people have seen where an autistic person has a meltdown and the most calming action was another to lay down beside them to let them know all is okay. It is true. Sometimes we need just presence. Don’t touch us. Don’t talk. Are you kidding? We can’t respond.
3) Do your research! — think about the companies you support or frequent and who the back. Do they help other neurodivergent people? Do they focus on money or on humans? You don’t have to be perfect. But stepping towards realizing your choices and actions affect others is a good step.
This is a little short blog, so I hope it gets your mind thinking. Neurodivergent people need help—but maybe not in the way you think.
insert image of THE yellow pad.
Yeah, um…its all coming.
Way back when, for some unknown reason, My brain went on a rampage writing down everything. To the point I had to bring a yellow traditional notepad with me wherever we went (which was driving around to 4-5 places not getting out of the car) all the while ideas for blogs and topics were just flooding into my head. The first part was mostly gibberish, but then I finally realized I could connect all of these ideas and started writing them down in some type of order.
The reason I posted this is I wanted to show why my brain thinks differently. This wasn’t controlled or something I turned on. It was sudden, immediate and completely blocking my brain of any real train of thought. It wouldn’t stop–it was painful to stop it while I was driving. And when I asked my husband to get the pencil out of my purse because I couldn’t find it with the notepad, I could feel myself tense up, get anxious and not think of anything else excepting getting that pencil. My brain would not shut it off.
This is what a hyperfocus info dump feels and acts like. It’s an overtaking obsession. It can be debilitating. And its just one of my autistic traits that can be both beneficial and detrimental to my general health.
If not you, then who?That Au-Some Incubator: Education, Advocacy, Collaboration
Hello everyone!— so i wantes to let you know about an awesome group one of my FB friends is starting up. If you want to make a difference in the world for other autistics, THIS is one of several places to start!
Come join us!
A few months back, I joined my first Discord group. It was a nice pleasure because I am meeting autistics from all over the world. Another advantage of joining this specific group under a chanel for “Yo Samdy Sam” has a couple book groups-one group for comment on amazing books and one book club. It was in this book club that we as a group decided as our first book we were going to read Odd Girl Out by Laura James.
The book is the story of a late diagnosis autistic women, her attempt to catalog her life experiences and how they fit into this new world that has opened up to her. I was glad we had decided to read this book as it was shorter than the other book we were considering and it also had audible options along with digital and paperback versions–something someone with ADHD/autistic struggles in executive functioning truly appreciate.
*********WARNING: SPOILER ALERTS************
This feels like a “duh” in my mind when you’re reading a book review, but not always. So what comes hereafter may be a spoiler alert. There are also some mild trigger warnings from the events in Mrs James’ life including divorce, discussions of addiction and a lot of emotional topics personally set me off some nights.
So let’s dive into the book. It is divided into 16 chapters, mostly in chronological order from August 2015 when the author first reads her evaluation about her autism diagnosis while on a getaway vacation she is taking before her children go to university. The book follows the events that transpire in her life interjecting a couple sections throughout random chapters where “flashbacks’ appear mid-thought. She is a writer for the Telegraph and even writes about her “coming out” as autistic in one of her articles. At first, this thru me off. But listening to the book on tape a little helped me out a lot listening to it while taking a long walk or when driving in the car. But then I realized I wanted to highlight almost every line on every page. So I did have to spend a lot of time sitting with the audio. But it was worth every minute. And yes, my poo paperback is covered his markings. Several markings.
Besides the book being completely relatable to my autistic life experience — the author is excellent at writing out her thought process. This is extremely helpful because I feel as an autistic person– sometimes people don’t hear how we are thinking. And (surprise!) we do NOT think like everyone else. I know personally I have a great problem with people putting words and thoughts in my head and this is typical of most autistics. So to hear words from another autistic in the words (like word for word phrases) was hugely supportive. Page 99–i highlighted half the page. Same true with pg 164-65. Here’s one form page 154 “If my interests were people-focused, they would be too painful to deal with. People are unpredictable. They say one thing and mean another. Autistic honest has a purity. Ask us a question and we will tell you the truth. One hundred per cent. Undiluted by squeamishness. Unadulterated.” I tell people this all the time–that my questions are true inquiries and I am several times too honest for life.
Another discussion I enjoyed was at the end of Chapter 6–about finding information and being happy with this as an autistic. Laura James talks about Sarah Wild (a director of a school made for autistic brains) and how she believes that Autistic happiness is different and that neurotypical people need to stop judging autistics by their neurotypical standards. “Meeting experts is pure heaven for someone autistic. The access I am given to someone’s knowledge never fails to make me happy. Even more so if they happen to know something about one of my current intense interests.” (pg 111-12)
So I would arguably say if you have an autistic family, friend or you yourself are autistic–please PLEASE read this book. It’s worth it. To hear a voice is huge.
DISCLAIMER: I am not a doctor. And this is my own experience from taking meds for my ADHD and meant to be used as a diagnosis, treatment or method for your own help. Seek out the professionals.
So after a good month of adjusting to taking ADHD meds, I had a meeting with my psych at Kaiser. This is the 3rd time I’ve talked with her. While I was mostly okay from taking the meds and my symptoms appeared to be improving, I had concerns about this weird feeling of not knowing when to go to sleep. Normally I wait until I’m yawning, can’t keep my eyes open or exhausted. That happened the first day quickly, but after a couple weeks, I couldn’t tell anymore. Dr H (hidden for privacy) decided we should try the immediate release drug since it seemed I was having a longer reaction to the extended release. So as a general practice, I waited to start the new drug on the weekend and April 18th I changed over to the new dose.
Picking up the drug was an experience. Due to the drug’s nature I had to physically pick it up. And like most of the world–we are in quarantine so I went over, wore a mask, stood in a couple lines to be asked questions and have temperature taken (I had no fever and was fine.) There was no one in the pharmacy area (a super surprise but expected) and I was able to get my meds quickly and efficiently. Which was great because then I could start them right away.
However, as I am finishing this blog on May 1st, I had even MORE changes happened. First–after a few days of getting on a better routine and schedule, I actually started liking having more control of my focus on the extended release. However, I stuck to taking the new meds because I didn’t know emotionally/mental if that was the issue. Suddenly–on the regular release–I lost control again. The drug hardly felt it was working, it was gone as soon as I took it and I was back into the crazy emotions and lack of focus. I thought it was going to be another transition period and wanted to take my time but it was just getting more and more difficult to do what I could. I sent her a message and I changed back to my extended release.
I’m doing well now that I’m back on the extended release. But I am concerned I will not be able to figure out when I’m having a bad reaction. I am also frustrated because Kaiser’s method is to have nurses answer the messages I send to the doctor which for medical items is not so much an issues, but with mental health has already run into problems They told me to order my prescription online–even though I knew because of its nature I could NOT do that.
SO we shall see how these meds work out.